Kaier Publishes Op-ed on Ichthyosis in New York Times

August 31, 2016

By Anne Kaier for The New York Times published August 24, 2016

Source: Finding Refuge With the Skin I'm In

Anne Kaier, adjunct professor of English, published “Finding Refuge With the Skin I’m In,” an op-ed that chronicles her experiences with lamellar ichthyosis, in The New York Times on Aug. 24.

The piece appeared in the paper’s Disability series, which features essays, art, and opinions by and about people living with disabilities. Kaier’s article serves not just as a reflection on her own memories of living with ichthyosis, but also as a means of educating readers about the genetic disorder:

It’s become fashionable to tell a disability story in a hopeful arc, where the heroine may have moments of discouragement or fear, but comes out into full life at the end — into mainstream schools, love and romance, full participation in the social world. Although I have done and had all of these, I still, now and then, allow myself to hide; I refuse, for a while, to encounter the world.

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 Anne Kaier